My nephew*, Dylan, landed back in ICU last week after experiencing another seizure. It’s been quite the rollercoaster for Ann & Brian & their boys.
Dyl is out of ICU, but still in the hospital. His recovery from last week’s episode is much rougher than the first — experiencing confusion & difficulty with speech. He’s getting speech therapy, OT, PT (having suffered some fractures in his back). Every specialist at UW Hospital in Madison is aware of his case, and Mayo Clinic is doing some testing. “There is nothing typical about it.”
Edited to add: The previous diagnosis of meningitis was based on the positive result of a “quick test,” the more in-depth test came back negative. So, it’s a bag full of symptoms, none of which conclusively point to any one thing. Not yet, anyway… keeping all the good vibes going in Dylan’s direction!
It’s going to be a long road to recovery. If you’re able & so inclined, a donation to the GoFundMe Fundraiser for Dylan would be most appreciated. There are so many expenses beyond those that insurance doesn’t cover in a case like this… such as care & feeding of his pup (pictured w/Dylan on the GoFundMe page), not to mention rent, utilities & car insurance. Those things don’t just stop when normal life is unexpectedly “on hold.”
*Technically, Dylan is my step-nephew (Ann’s stepson), but I’ve known him since he was five, so… FAMILY.
_ _ _ _ _
We did indeed have snow on Saturday!
It snowed all day, totaling about 6″ in the end.
I took an opportunity, early in the day, to take the girls for haircuts — similar to my date with the boys a while back.
Ginny just had a good trim, Malina got more of a chop (and she had had enough with growing out her bangs!).
We went to Culver’s (of course) for lunch, then a quick stop at the grocery store before we hunkered down for the rest of the day.
Discover more from knitorious
Subscribe to get the latest posts sent to your email.
I’m so sorry that Dylan had another seizure and I hope he gets answers and treatment for all of his many worrying issues. We’ve had a week of precipitation – snow, sleet, freezing rain, wintry mix, but it doesn’t look as nice as your snow. I recognized Ginny but I wondered who that young lady was with her. These girls are growing up fast!
Thank you, Vicki! It’s been so scary. He never had anything like this before. As he progresses each day, I find the waves of emotion to be strong. Meanwhile, he is showering once again and doctor’s have limited visits for his recovery (he is a popular guy!).
I am so sorry that Dylan has had a setback. I will continue to hold him close in my thoughts, Vicki! I hope he is better and SOON!
Those girls… they are just so adorable! (And Culver’s FTW!)
Also so sorry that Dylan has such a challenge. I hope he gets a diagnosis soon. Much easier to go forward. Sending good thoughts for the whole family. And also yes, those girls are growing much too quickly! So cute both of them.
I am sorry about your nephew’s challenges. I have a very good friend whose son has a significant seizure disorder. Life is a challenge with that diagnosis. I’m sending good thoughts for everyone. The girls look like they had a great time. Fun for sure.
Thanks for the update Vicki … keeping the family and the doctors in my thoughts – glad he’s getting good care and can only hope a diagnosis will come soon. Those girls with their haircuts – what a treat!
Sending all my best juju and love Dylan’s way — with plenty directed at your entire family, besides. I’m so sorry it’s such a trick and complicated diagnosis. XO And those girls! I love watching them grow up, Vicki, and I thank you for sharing them with us. XO
I’m sorry to hear about this setback, and I hope they figure out what’s happening soon so he can recover!
Looks like a lovely day with the girls. They both look very glamorous with their blow-outs!
I’m sorry to hear that news about Dylan and I hope you all have some answers and a treatment plan really soon. XOXO